I think when I look back at the past year I’ll say it’s the
year I really learnt to accept my disability. Finally understanding what is
going on has made a massive difference, and I feel like I finally am being
taken seriously by the medical community. Although this year has been full of
medical annoyances, I think I’ve learnt that I’ll pretty much hate any hospital
appointment. Last week I went to see a dermatologist about something completely
unrelated to EDS or POTS, and as with all of my appointments about the chronic
stuff, it was one of the most impersonal and unfriendly experiences. She didn’t
smile, introduce herself or generally have any bedside manner whatsoever. Mr
Spoonie Foodie was absolutely dumbfounded by it, but I‘ve learnt such is the
way with most specialist consultants and get less angry every time I experience
it. I’ve started to accept my limitations, now that’s not to say I’m not going
to fight them and try and get better, but it seems I am finally learning to
live within my capabilities. Deciding to use the wheelchair will probably go
down as one of the biggest things I did to help myself, I thought it would feel
like defeat but instead it has been totally and utterly freeing.
2014 will also go down as the first year I decided to not go
out for New Years, not through illness, but because I knew it would be the
wrong thing for my body. We had plans to go to a night at a local pub with
friends, but the more I thought about it the less I wanted to go. I woke up on new years eve and
decided I didn’t want to start another year with a week in bed feeling dreadful
and emotionally raw. Instead I made an absolute feast for one of our best
friends and his girlfriend, and wished them farewell when they went off. I had
a glass of prosecco and went to bed. It was fantastic! (It wasn’t so fantastic
when I was woken up by a very drunk Mr SF at 5.30 am, but we’ll just brush past
that). I’m certainly not saying I’ll never go on a big night out again, but I’ve
been feeling so good recently I didn’t want to ruin it on what is just another
night out.
So, what do I hope 2015 holds for me? To be honest I don’t
know, and I’m ok with that. I’m definitely not one for making resolutions, but
I do have some aims. I’m starting the year with the strongest frame of mind I’ve
had in a long time. I’m eager to do more, and would love to start regular work
again, but I’m also aware of not doing too much and pushing myself backwards
again. I want to do some studying, as I mentioned before I’m really interested
in nutritional science and there’s loads of other stuff out there to keep my
mind occupied. I’ve also decided to give myself a Christmukkah present this year
of private Pilates classes. I’ve contacted a recommended instructor and am
waiting to hear back and I'd like to post more regularly on the blog, particularly more recipes. But most of all for 2015 I just want to stay feeling ok. I’ve
had one of the nicest Christmases that I can remember. It’s been a constant
stream of family and friends, which although has made me anxious at times, has
just reminded me just how good I have it. I recently got to meet my new nephew, and
there’s a strangely nice feeling about the fact that the next generation of the
family has been born. Yes, things in my life could be better but I’m feeling
pretty content at the moment. I have friends, a beautiful home, a loving
partner and a fabulous family, plus I cook really good food!
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